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Rickets/Osteomalacia, Pediatric

para>Ca, calcium; Phos, phosphorus; Alk phos, alkaline phosphatase; iPTH, intact parathyroid hormone; 25-(OH)D, 25-vitamin D; 1,25-(OH)2D, 1,25-dvitamin D; Ca/Cr, calcium/creatinine ratio; TRP, tubular reabsorption of phosphorus ([1 " ô (U phos â Ś P Cr/U Cr â Ś S Phos)] â Ś 100, normal 85 " ô95%); N, normal; AD, autosomal dominant; AR, autosomal recessive

Risk Factors


  • Infants born to vitamin D " ôdeficient mothers
  • Low birth weight and/or prematurity
  • Breastfeeding without vitamin D supplementation
  • Poor nutrition
  • Increased skin pigmentation
  • Higher latitudes and winter months
  • Use of sunscreens
  • Malabsorption
  • Renal tubulopathies

Diagnosis


History


  • Inadequate nutrition
    • Prolonged breastfeeding without vitamin D supplementation
    • Low dietary calcium intake
    • Strict vegan diet without adequate calcium
    • Premature infants taking unfortified formula
    • Parenteral hyperalimentation
  • Low levels of sunlight exposure
  • Symptoms of malabsorption:
    • Steatorrhea, abdominal pain, weight loss
  • Symptoms of renal tubular dysfunction:
    • Nephrolithiasis, polyuria
  • Bone pain
  • Delayed gross motor development
  • Generalized muscular weakness
  • Irritability
  • Fractures following minimal trauma
  • Dental abscesses
  • Anticonvulsant use
  • Family history of rickets

Physical Exam


  • Growth deceleration
  • Widening at the wrists, knees, and/or ankles
  • Bowing of the extremities (varus or valgus deformities)
  • Skull abnormalities
    • Anterior fontanelle widening and/or delayed closure
    • Frontal bossing
    • Craniotabes (softening of the skull)
  • Chest deformities
    • Prominent costochondral junctions ( "rachitic rosary " Ł)
    • Pectus carinatum
    • Horizontal groove along the lower ribs ( "Harrison groove " Ł)
  • Scoliosis
  • Hypotonia
  • Waddling gait

Diagnostic Tests & Interpretation


Initial Lab
  • 25-vitamin D
    • Major circulating form, and most sensitive indicator of vitamin D stores
    • Sometimes reported as D2 (plant derived) and D3 (animal derived) forms
    • D2 + D3 = total available 25-vitamin D
  • Serum calcium, phosphorous (make sure age-appropriate norms for phosphorus are used by lab), and alkaline phosphatase
  • Intact parathyroid hormone
  • Urine calcium, creatinine, and urinalysis
  • If rarer forms of rickets being considered: 1,25-vitamin D, urine phosphorus

Imaging
  • Radiographic findings:
    • Widening, cupping, and/or fraying of the growth plates
    • Expansion of anterior ribs at the costochondral junctions
    • Bowing of the long bones
    • Osteopenia
  • Knee or wrist films may be used diagnostically, and to monitor treatment response

Differential Diagnosis


  • See Table 1 for ways to differentiate forms of rickets.
  • Metaphyseal chondrodysplasia
  • Blount disease
  • Chronic recurrent multifocal osteomyelitis
  • Neurofibromatosis type 1
  • Renal osteodystrophy (combines features of rickets, osteomalacia, secondary hyperparathyroidism, and osteoporosis)

Treatment


General Measures


Treatment depends on the underlying etiology. é á

Additional Therapies


  • Treatment of vitamin D deficiency: high dose repletion with cholecalciferol (D3) or ergocalciferol (D2) over 8 " ô12 weeks (goal total of ~200,000 " ô400,000 IU)
    • Infants and children <5 years of age: 2,000 IU daily
    • Children 5 years of age " ôadult: 4,000 " ô5,000 IU daily, or 14,000 to 50,000 IU weekly
  • Following repletion, transition to daily maintenance dose (see "Table 2 " Ł).
    é á
    Table 2Dietary reference intake for calcium and vitamin DView LargeTable 2Dietary reference intake for calcium and vitamin DCalciumVitamin DAgeEstimated Average Requirement (mg/day)Recommended Dietary Allowance (mg/day)Upper Level Intake (mg/day)Estimated Average Requirement (IU/day)Recommended Dietary Allowance (IU/day)Upper Level Intake (IU/day)0 " ô6 months2002001,0004004001,0006 " ô12 months2602601,5004004001,5001 " ô3 years5007002,5004006002,5004 " ô8 years8001,0002,5004006003,0009 " ô18 years1,1001,3003,0004006004,00019 " ô30 years8001,0002,5004006004,000

    Adapted from Ross é áC, Abrams é áS, Aloia é áJ, et al. Dietary Reference Intakes for Calcium and Vitamin D. Washington, DC: The National Academies Press; 2011.

  • Supplement with 30 " ô75 mg/kg elemental calcium divided t.i.d. to prevent hungry bone syndrome (hypocalcemia and hypophosphatemia during healing).
  • Higher doses of vitamin D often required in patients with malabsorption, altered vitamin D metabolism, and/or obesity
  • Optimal serum 25-vitamin D concentrations are controversial, however concentrations >20 ng/mL (50 nmol/L) sufficient to prevent rickets in otherwise healthy children.

Issues for Referral


  • Consider endocrinology referral for infants, children with hypocalcemia, severe disease, suspected genetic forms of rickets, and/or lack of radiographic evidence of healing by 3 months.
  • Nephrology referral for management of tubular dysfunction
  • Orthopedic referral for patients with severe bowing

Inpatient Considerations


Admission Criteria
  • Rickets can generally be managed in the outpatient setting, however inpatient admission may be considered if:
    • Severe hypocalcemia with tetany or seizures
    • Lack of response to therapy (suspected non-adherence)

Discharge Criteria
  • Stable laboratory values
  • Normalization in mental status and neurology exam improvement

Ongoing Care


Follow-up Recommendations


Patient Monitoring
  • Monitor serum calcium, phosphorus, alkaline phosphatase, PTH, and spot urinary calcium/creatinine ratio every 2 " ô4 weeks. Note: Alkaline phosphatase may rise initially with treatment and then decrease gradually.
  • Consider follow-up imaging after completion of high-dose vitamin D repletion.
  • Patients who continue high-dose vitamin D for longer than prescribed may be at risk for hypercalcemia.

Patient Education


Ensure appropriate vitamin D and calcium intake to prevent recurrence (see "Table 2 " Ł). é á

Prognosis


  • Rickets generally resolves with appropriate treatment.
  • If radiographs and/or biochemical parameters not improving, consider the possibility of poor adherence, other forms of rickets, or alternative diagnoses.

Complications


  • Failure to thrive, poor motor development
  • Bowing and skeletal deformity
  • Fractures
  • Hypocalcemic tetany and seizures

Additional Reading


  • Holick é áMF, Binkley é áNC, Bischoff-Ferrari é áHA, et al. Evaluation, treatment, and prevention of vitamin D deficiency: an Endocrine Society clinical practice guideline. J Clin Endocrinol Metab.  2011;96(7):1911 " ô1930. é á[View Abstract]
  • Prentice é áA. Vitamin D deficiency: a global perspective. Nutr Rev.  2008;66(10)(Suppl 2):S153 " ôS64. é á[View Abstract]
  • Ross é áC, Abrams é áS, Aloia é áJ, et al. Dietary reference intakes for calcium and vitamin D. Institute of Medicine Report Brief.  2010.
  • Shaw é áNJ, Mughal é áMZ. Vitamin D and child health part 1 (skeletal aspects). Arch Dis Child.  2013;98(5):363 " ô367. é á[View Abstract]
  • Weisberg é áP, Scanlon é áK, Li é áR, et al. Nutritional rickets among children in the United States: review of cases reported between 1986 and 2003. Am J Clin Nutr.  2004;80(6)(Suppl):1697S " ô1705S. é á[View Abstract]

Codes


ICD09


  • 268.0 Rickets, active
  • 268.9 Unspecified vitamin D deficiency
  • 275.40 Unspecified disorder of calcium metabolism

ICD10


  • E55.0 Rickets, active
  • E55.9 Vitamin D deficiency, unspecified
  • E58 Dietary calcium deficiency

SNOMED


  • 41345002 Rickets (disorder)
  • 34713006 Vitamin D deficiency (disorder)
  • 238117007 Calcium deficiency (disorder)
  • 82236004 Familial x-linked hypophosphatemic vitamin D refractory rickets (disorder)

FAQ


  • Q: What is the best way to diagnose rickets?
  • A: Laboratory evaluation and x-rays are the best ways to make the diagnosis. Radiographic findings are best seen at the distal radius and ulna, and/or the distal femur and proximal tibia.
  • Q: What are the recommendations for vitamin D supplementation in infants and children?
  • A: The American Academy of Pediatrics recommends the following:
  • All breastfed infants should receive 400 IU daily.
  • Nonbreastfed infants ingesting <500 mL/day of vitamin D " ôfortified formula or milk should receive 400 IU daily.
  • Children who do not get regular sunlight exposure or do not consume at least 500 mL/day of vitamin D " ôfortified milk should receive 600 IU daily.
  • Q: How is rickets/osteomalacia different from osteoporosis?
  • A: Osteoporosis in children is defined by a combination of decreased bone mass coupled with fracture. Although bone density is reduced, bone matrix is generally normally mineralized. In rickets/osteomalacia, the primary defect is impaired mineralization of the underlying bone matrix. Osteoporosis and rickets/osteomalacia both result in an increased fracture risk; however, osteoporosis does not generally lead to growth plate and long bone deformities.
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