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Hyperlipidemia, Pediatric


Basics


Description


Hyperlipidemia is an elevation of serum lipids. These lipids include cholesterol, cholesterol esters (compounds), phospholipids, and triglycerides. Lipids are transported as part of large molecules called lipoproteins.  
  • 5 major families of lipoproteins
    • Chylomicrons
    • Very-low-density lipoproteins (VLDL)
    • Intermediate-density lipoproteins (IDL)
    • Low-density lipoproteins (LDL)
    • High-density lipoproteins (HDL)
  • Normal serum lipid concentrations
    • Total cholesterol: 170 mg/dL (borderline, 170-199 mg/dL)
    • LDL cholesterol: <110 mg/dL (borderline, 110-129 mg/dL)
    • HDL cholesterol: ≥35 mg/dL
    • Total triglycerides: 100 mg/dL (borderline, 100-140 mg/dL)
    • More detailed age- and gender-specific values are available (refer to Table 2 of 2008 Clinical report: lipid screening and cardiovascular health in childhood).
  • Primary hypercholesterolemia or hypertriglyceridemia: elevation in serum cholesterol or triglyceride as a result of an inherited disorder of lipid metabolism (i.e., familial hypercholesterolemia)
  • Secondary hypercholesterolemia or hypertriglyceridemia: elevation in serum cholesterol or triglyceride as a result of another disease process (e.g., diabetes mellitus)

Epidemiology


  • The prevalence of homozygous familial hypercholesterolemia (FH) is 1 in 1,000,000; the incidence of the heterozygous state is 1 in 500.
  • Unknown causes result in hypercholesterolemia and/or hypertriglyceridemia, occurring in 2% of the population.
  • National Health and Nutrition Examination Surveys (NHANES I-III) provides information about pediatric serum cholesterol concentrations.
    • For all children 4-17 years, the 95th percentile for serum total cholesterol is 216 mg/dL and the 75th percentile is 181 mg/dL.
    • Before puberty, average total and LDL cholesterol levels are significantly higher in girls than boys.
    • The mean total cholesterol level for all children from 4 to 11 years old peaks at age 9-11 years and then gradually decreases until mid to late adolescence.

Risk Factors


Genetics
  • FH: dominantly inherited defect of LDL receptor
  • Familial combined hyperlipidemia (FCHL): dominantly inherited lipid disorder, polygenic
  • Familial hypertriglyceridemia (FHTG): autosomal recessive disorder due to defects in lipoprotein lipase

General Prevention


  • Fat intake is generally unrestricted prior to 2 years of age. After 2 years of age, two complementary approaches are recommended.
  • Diet and lifestyle guidelines are to promote:
    • Consuming an overall healthy diet
    • Maintaining a healthy body weight (BMI <85% for children)
  • Recommended lipid levels
    • LDL cholesterol <110 mg/dL
    • HDL cholesterol >50 mg/dL in women, >40 mg/dL in men
    • Triglycerides <150 mg/dL
  • Normal, age-appropriate BP
  • Normal blood glucose level (fasting blood glucose ≤100 mg/dL)
  • Remaining physically active
  • Avoiding use of and exposure to tobacco products

Diagnosis


History


  • Family history of premature heart disease or dyslipidemia
    • Almost all cases of primary hyperlipidemia are of dominant inheritance.
  • Smoking
    • Smoking reduces HDL cholesterol levels and increases the risk of vascular disease.
  • Use of oral contraceptives
    • Birth control pills have been shown to cause elevations in lipoprotein levels and, when coupled with already elevated lipid levels, can increase the risk of atherosclerosis.
  • Diet
    • Children with increased intake of fat, carbohydrates, sugar-added drinks, and fast foods are likely to be overweight/obese.
  • Obesity
    • Obese children are more likely to have abnormal serum lipids.

Physical Exam


  • Eye exam
    • Arcus corneae: deposits of cholesterol, resulting in a thin, white circular ring located on the outer edge of the iris
  • Skin exam
    • Tendon xanthomas: thickened tissue surrounding the Achilles and extensor tendons
    • Xanthelasma: yellowish deposits of cholesterol surrounding the eye
    • Palmar xanthomas: pale lines in palmar creases
    • Eruptive xanthomas: characteristic of hypertriglyceridemia; papular yellowish lesions with a red base that occur on the buttocks, elbows, and knees
    • Enlarged tender liver may present in association with fatty liver.

Diagnostic Tests & Interpretation


Lab
  • Starting age 2-8 years
    • Screen children and adolescents who have:
      • Positive family history of dyslipidemia or premature cardiovascular disease (CVD) (≤55 years old for men, ≤65 years old for women), such as coronary atherosclerosis, documented myocardial infarction (MI)
      • Unknown family history
      • Obesity (BMI ≥95th percentile) or overweight (BMI ≥85th-<95th percentile)
      • Cigarette smoking exposure
      • Hypertension
      • Diabetes mellitus
    • Screen using a fasting lipid profile (FLP): total cholesterol, HDL cholesterol, LDL cholesterol, and triglycerides.
    • If FLP is within normal range, repeat test in 3-5 years.
  • Age 9-11 years: NHLBI-AAP recommend universal screening.
    • Screen using either an FLP or nonfasting lipid profile (LP): if done nonfasting and non-HDL >145 mg/dL, then repeat as FLP.
    • Non-HDL = total cholesterol-HDL
  • Age 12-16 years
    • Screen children and adolescents with risk factors as with 2-8 years group.

Consider other testing:  
  • Chemistry panel (glucose, ALT, AST, bilirubin, BUN, creatinine, urinalysis)
    • Screening test for diabetes, liver, and kidney disease
  • Thyroid evaluation (thyroxine [total T4], thyroid stimulating hormone [TSH])
    • Determines the presence of hypothyroidism

Alert
  • Serum total cholesterol is inaccurate when serum triglycerides are >400 mg/dL.
  • Hypertriglyceridemia is associated with falsely lowered serum Na.

Differential Diagnosis


  • Hypercholesterolemia
    • Primary hypercholesterolemia (see above)
    • Hypothyroidism
    • Nephrotic syndrome
    • Liver disease (cholestatic)
    • Renal failure
    • Anorexia nervosa
    • Acute porphyria
    • Medications (antihypertensives, estrogens, steroids, microsomal enzyme inducers, cyclosporine, diuretics)
    • Pregnancy
    • Dietary: excessive dietary intake of fat, cholesterol, and/or calories
  • Hypertriglyceridemia
    • Primary hypertriglyceridemia (see above)
    • Acute hepatitis
    • Nephrotic syndrome
    • Chronic renal failure
    • Medications (diuretics, retinoids, oral contraceptives)
    • Diabetes mellitus
    • Alcohol abuse
    • Lipodystrophy
    • Myelomatosis
    • Glycogen storage disease
    • Dietary: excessive dietary intake of fat and/or calories

Treatment


Medication


  • Drug therapy should be considered only for children ≥8 years of age after an adequate trial of diet therapy (for 6-12 months) and if they have one of the following:
    • LDL cholesterol level remains >190 mg/dL
    • LDL cholesterol level remains >160 mg/dL, and there is a family history of premature CVD (≤55 years of age for men, ≤65 for women) or ≥2 other risk factors are present (obesity, hypertension, cigarette smoking).
    • LDL ≥130 mg/dL and have diabetes mellitus
  • Physicians caring for overweight and obese children who have lipid disorders should emphasize the importance of diet and exercise rather than drug therapy for most of their patients.
  • Statins (first-line drug therapy)
    • Decrease endogenous cholesterol synthesis and increase clearance of LDL from circulation
    • Similar safety and efficacy in the treatment of lipid disorders in children as in adults
    • Side effects include hepatitis and myositis.
  • Bile acid-binding resins
    • Bind cholesterol in bile acids in intestine and prevent reuptake into enterohepatic circulation
    • Associated with GI discomfort
    • Very poor compliance in children
  • Niacin
    • Lowers LDL and triglycerides while increasing HDL
    • Poorly tolerated in children due to side effects in >50%, including flushing, itching, and elevated hepatic transaminases
  • Drugs needing further pediatric studies: cholesterol absorption inhibitors and fibrates

Additional Therapies


General Measures
  • Outpatient management unless secondary hyperlipidemia caused by liver or renal failure, which would necessitate inpatient management of primary illness. Note: The cause of secondary hyperlipidemia should be treated with disease-specific therapy to reduce elevated lipid levels.
  • Risk assessment and treatment
    • Population approach
      • General emphasis on healthy lifestyle to prevent development of dyslipidemias
      • Recommendations include increasing intake of fruits, vegetables, fish, whole grains, and low-fat dairy products; reducing intake of fruit juice, sugar-sweetened beverages and food.
    • Individual approach
      • Focuses on patients who are high risk
      • Initial intervention is focused on changing diet, but patients often require pharmacologic intervention.

Additional Therapies


Activity  
  • 60 minutes of moderate to vigorous play or physical activity daily
  • Reduce sedentary behaviors (e.g., watching TV, playing videogames, using computers)
  • Participation in organized sports

Ongoing Care


Follow-up Recommendations


Patient Monitoring
  • For patients with primary hyperlipidemia who are off medication, follow-up should be performed every 1-2 years with a lipoprotein profile evaluation. For those patients on medication, follow-up should be conducted every 3-6 months.
  • For all other patients with risk factors and normal lipid profile, a monitored lifestyle and dietary changes should be strongly recommended at every office visit.

Diet


  • Dietary modification is safe in the treatment of hyperlipidemia in children >2 years of age:
    • Restrict saturated fat to <7% daily calories.
    • Restrict dietary cholesterol to 200 mg/day.
    • Limit trans fatty acids to <1% daily calories.
    • Supplemental fiber at goal dose of child's age + 5 g/day (up to 20 g/day)
  • For children between 12 months and 2 years who are overweight, obese, or have a family history of dyslipidemia or CVD, the use of reduced fat milk can be considered.

Prognosis


  • Familial hypercholesterolemia
    • Homozygotes: coronary artery disease in 1st or 2nd decade of life
    • Heterozygotes: 50% of males develop premature heart disease by age 50 years (females, age 60 years).
  • Familial combined hyperlipidemia: occurs in 1-2% of the population and accounts for 10% of all premature heart disease. A reduction of LDL cholesterol by 1% reduces risk by 2%.
  • Children and adolescents with high cholesterol levels are more likely than the general population to have high levels as adults.

Complications


  • Hypercholesterolemia has been linked to premature coronary artery disease and vascular disease.
  • Severe hypertriglyceridemia can cause pancreatitis.

Additional Reading


  • Daniels  SR, Greer  FR, Committee on Nutrition. Lipid screening and cardiovascular health in childhood. Pediatrics.  2008;122(1):198-208.  [View Abstract]
  • Expert Panel on Integrated Guidelines for Cardiovascular Health and Risk Reduction in Children and Adolescents; National Heart, Lung, and Blood Instute. Expert panel on integrated guidelines for cardiovascular health and risk reduction in children and adolescents: summary report. Pediatrics.  2011;128(Suppl 5):S213-S256.
  • Gidding  SS, Dennison  BA, Birch  LL, et al. Dietary recommendations for children and adolescents: a guide for practitioners: consensus statement from the American Heart Association. Circulation.  2005;112(13):2061-2075.  [View Abstract]
  • Kavey  RE, Allada  V, Daniels  SR, et al. Cardiovascular risk reduction in high-risk pediatric patients. A scientific statement from the American Heart Association. Circulation.  2006;114(24):2710-2738.
  • McCrindle  BW, Urbina  EM, Dennison  BA, et al. Drug therapy of high-risk lipid abnormalities in children and adolescents: a scientific statement from the American Heart Association. Circulation.  2007;115(14):1948-1967.  [View Abstract]

Codes


ICD09


  • 272.4 Other and unspecified hyperlipidemia
  • 272.0 Pure hypercholesterolemia
  • 272.1 Pure hyperglyceridemia

ICD10


  • E78.5 Hyperlipidemia, unspecified
  • E78.0 Pure hypercholesterolemia
  • E78.1 Pure hyperglyceridemia
  • E78.4 Other hyperlipidemia

SNOMED


  • 55822004 hyperlipidemia (disorder)
  • 238076009 primary hypercholesterolemia (disorder)
  • 302870006 Hypertriglyceridemia (disorder)
  • 398036000 Familial hypercholesterolemia (disorder)
  • 34528009 Familial hypertriglyceridemia (disorder)

FAQ


  • Q: When should I screen for dyslipidemia, and what test should I use for screening?
  • A: All children between ages 9 and 11 years should be screened for dyslipidemia using a non-FLP. Children between 2-8 years and 12-16 years should be screened using an FLP only if they have risk factors.
  • Q: What should my initial management of a child with dyslipidemia include?
  • A: The management plan of any child with dyslipidemia is dependent on the age of the child and should include dietary recommendations, a focus on all aspects of heart health, and in selected cases, the use of pharmacotherapy.
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