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Interstitial Cystitis Discharge Instructions


About this topic


Interstitial cystitis is a chronic bladder problem. It is not a bladder infection, but the bladder is red and sore. The bladder may become stiff and not able to fill up with a lot of urine. You may feel mild to severe discomfort that can come and go, or stay constantly. You may feel pressure to go to the bathroom all the time, even if you just urinated. Sometimes patients feel more pain the longer they wait to go to the bathroom, since the bladder is filling up. Some people with interstitial cystitis have pain during or after sexual activity. Men may have pain in the penis or scrotum. ‚  
Your treatment will be based on your signs. ‚  

What care is needed at home?


  • Ask your doctor what you need to do when you go home. Make sure you ask questions if you do not understand what the doctor says. This way you will know what you need to do.
  • Set times throughout the day when you will try to pass urine. Do not pass urine until these times. This is called bladder retraining. Your doctor will give you more information on this.
  • Do not use bubble baths because they can bother your bladder or genital area.
  • Lose weight if you are overweight.
  • Change what you drink and how often.
    • Drink lots of water during the day instead of lots of water at one time.
    • Stop drinking water or other drinks about 2 hours before you go to bed.
    • Stop drinking caffeine and beer, wine, and mixed drinks (alcohol).
  • Avoid spicy, acidic foods, preservatives, coffee, chocolate, and artificial sweeteners.
  • Pay attention to how your body and bladder react to certain foods and drinks. Try to avoid things that make your bladder more painful.
  • Use deep breathing, yoga, or guided imagery to try to relax.
  • Heat may help lower your pain. Put a heating pad on your belly for no more than 20 minutes at a time. Never go to sleep with a heating pad on as this can cause burns.
  • Practice proper hygiene. Wipe from front to back after using the bathroom.
  • Avoid using scented tampons, soap, or toilet paper.

What follow-up care is needed?


The doctor may ask you to make visits to the office to check on your progress. Be sure to keep these visits. ‚  
The doctor may do treatments every week or two in the office or a treatment area. Ask your doctor if weekly treatments with special drugs put into the bladder are right for you. If your doctor orders these treatments, be sure to keep these visits. ‚  

What drugs may be needed?


The doctor may order drugs to: ‚  
  • Help with pain
  • Relax your bladder and block pain
  • Reduce your need to go to the bathroom right away
  • Fight an infection
  • Block your bodys response to certain hormones
  • Stop bladder spasms

Will physical activity be limited?


Physical activities may be limited due to pain and other signs of interstitial cystitis. ‚  

What problems could happen?


  • Stiff bladder wall
  • Reduced bladder capacity
  • Emotional stress
  • Chronic pain that may cause a change in lifestyle
  • Pain with sex

When do I need to call the doctor?


  • Signs of infection. These include a fever of 100.4 ‚ °F (38 ‚ °C) or higher, chills.
  • Blood in the urine
  • Very bad pain in your back, sides, or belly
  • Discharge from the penis or vagina
  • You are not feeling better in 2 to 3 days or you are feeling worse

Teach Back: Helping You Understand


The Teach Back Method helps you understand the information we are giving you. The idea is simple. After talking with the staff, tell them in your own words what you were just told. This helps to make sure the staff has covered each thing clearly. It also helps to explain things that may have been a bit confusing. Before going home, make sure you are able to do these: ‚  
  • I can tell you about my condition.
  • I can tell you what are good fluids for me to drink.
  • I can tell you what may help ease my pain.
  • I can tell you what I will do if I have a fever; chills; blood in my urine, back, or side; or belly pain.

Where can I learn more?


American Urological Association ‚  
http://www.urologyhealth.org/urology/index.cfm?article=67 ‚  
FamilyDoctor.org ‚  
http://familydoctor.org/familydoctor/en/diseases-conditions/interstitial-cystitis/treatment.printerview.all.html ‚  

Consumer Information Use and Disclaimer


This information is not specific medical advice and does not replace information you receive from your health care provider. This is only a brief summary of general information. It does NOT include all information about conditions, illnesses, injuries, tests, procedures, treatments, therapies, discharge instructions or life-style choices that may apply to you. You must talk with your health care provider for complete information about your health and treatment options. This information should not be used to decide whether or not to accept your health care providers advice, instructions or recommendations. Only your health care provider has the knowledge and training to provide advice that is right for you. ‚  

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